The Edward P. Evans Foundation has been awarded the Leadership in Philanthropy award in recognition for its support of the AAMDSIF MDS Clinical Research Consortium.
Established in 2012, the MDS Clinical Research Consortium consists of 6 leading medical institutions that collaborate on unique clinical trials to advance treatments and improve outcomes for patients with myelodysplastic syndromes (MDS). The Consortium fills a major gap in MDS-related clinical research in the U.S. by providing a new “critical mass” of patients and patient data to support the evaluation of promising new compounds, epidemiological studies and translational studies leading to new classifications, treatments and procedures. This expanded access to patient data, tissue samples and the use of a standardized patient work-up enhances research and leads to accelerated outcomes that are potentially beneficial for patients.
The Edward P. Evans Foundation, whose primary mission is to support transformational and collaborative medical research in the areas of myelodysplastic syndromes and acute myeloid leukemia, supported the five-year, $16 million initiative. This funding is believed to be the largest single award ever given in support of MDS clinical research.