Patients | Aplastic Anemia and MDS International Foundation

Patients

Mark your calendars! AAMDSIF will be hosting seven national “Living with Aplastic Anemia, MDS, PNH” patient and family conferences in cities around the country. Each free conference offers incredible learning opportunities from leading medical experts, the ability to connect directly with other patients and caregivers and hope for the future. So, where will we see you in 2018?

The conference was excellent. The blankets were wonderful. Small breakouts and info was very valuable. You gave us a lot of hope and options more than we realized we had. - Gail (Aplastic anemia patient and 2016 conference participant)

2018 Registration Will Open Soon!

If you have questions regarding our conferences or registration, please call our conference information line at 301-279-7202 x 128 or email us at conference@aamds.org

Access Presentation Materials from Past Conferences

Who should attend?

  • Aplastic anemia, PNH, MDS and AML patients
  • Patients dealing with myelofibrosis, PRCA, CMML or GVHD
  • Those who are newly diagnosed or currently in treatment, as well as long-term survivors
  • Caregivers, family members or friends
  • Nurses and other healthcare professionals are also welcome

What’s new for 2018?

  • MDS to AML Disease Session: We have added a new session on the current thinking and advances in treatment for AML patients.
  • Optimizing Your Well-Being: Learn about practical strategies for supporting your mind, body and spirit
  • Survivorship Care Planning: Learn about what’s next in your journey and what you can do to improve your quality of life
  • Inclusion of information on CMML, MPNs, PRCA and GVHD within our disease and treatment sessions. We will help you understand how these are related to bone marrow failure and provide a basic understanding of diseases and treatments.
  • A Time to Celebrate: Join us as we end the day with an uplifting and hopeful end to a powerful day
  • Limited Conference Travel Assistance – If the cost of traveling to our conferences is a barrier, please learn about how we may be able to help.

Why should you attend?

Conferences

  • Gain unprecedented access to top experts
  • Get your questions answered
  • Return home a wiser and better-equipped self-advocate
  • Meet those who genuinely understand what you are going through
  • Build a strong and supportive community
  • Leave with a sense of optimism and hope for the future
  • It’s FREE, so mark your calendars now. Advance registration is always recommended.

What to Expect from 2018 Conferences:

  • Join us the Friday night before the conference to socialize and meet other patients, families and caregivers.
  • An in-depth review of the current thinking on aplastic anemia, PNH, MDS and AML.
  • Basic review of disease and treatment information on CMML, MPNs, PRCA and GVHD.
  • Practical steps you can take to become an even stronger advocate for your best care and treatment.
  • Practical strategies for improving your health and well-being in spite of your illness.
  • Meet other patients and family members, join a Community Connection group in your area and discover our Peer Support Network.
  • Learn how AAMDSIF can help you with this life-altering journey.