Recent FDA Approval of Danicopan for Patients with PNH
Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria.
Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant
Damian was very active when routine blood work showed a problem. But Damian decided that going through treatment would be his mission, even if that meant two transplants. Listen here to his story.
2024 Tampa Patient and Family Conference
Event Date:
Sat, 10/19/2024 - 7:30am (EDT)
Bone Marrow Disease(s):
Conference Event Type:
2024 Philiadelphia, PA, Patient and Family Conference
The conference will occur over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
This conference will provide sessions for both adults and children.
At the hotel, parking is valet only and paid by AAMDSIF.
Conference location - The Inn at Penn @ 3600 Sansome Street Philadelphia, PA 19104
Event Date:
Fri, 07/19/2024 - 2:00pm (EDT) to Sat, 07/20/2024 - 4:00pm (EDT)
Bone Marrow Disease(s):
Conference Event Type:
2023 New Haven Patient and Family Conference
On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT. Find recordings or materials from this conference here.
Session Recordings:
Event Date:
Sat, 10/14/2023 - 8:15am (EDT)
Bone Marrow Disease(s):
March for Marrow - Walk for PNH 2024
Event Date:
Sun, 09/22/2024 - 8:00am (EDT)
Community Event Type:
2024 Chicago Patient and Family Conference
Register now for the 2024 Patient and Family Conference, held in partnership with the University of Chicago.
Event Date:
Sat, 09/14/2024 - 7:30am (EDT)
Bone Marrow Disease(s):
Conference Event Type:
2024 Seattle Patient and Family Conference
The time is now to save your seat for the 2024 Patient and Family Conference in Los Angeles!
Plan to attend on June 22, 2024, in Seattle, WA, in partnership with Fred Hutchinson Cancer Center - Register Here
Conference Location: Fred Hutchinson Cancer Research Center Weintraub Building 1100 Fairview Ave N Seattle, WA 98109
Parking: There is parking in front of the Weintraub Building.
Event Date:
Sat, 06/22/2024 - 7:45am (EDT)
Bone Marrow Disease(s):
Conference Event Type:
2024 Los Angeles Patient and Family Conference
2024 Patient and Family Conference in Los Angeles
Recordings will be coming soon!
The conference offered special post-transplant sessions.
Conference Location: Cooper Auditorium @ City of Hope 1500 E. Duarte Rd Duarte, CA 91010
Parking: Lots HV or G The parking lots are next to the Hope Village Hotel located on the Northwest corner of the City of Hope Campus. (Duarte Rd and Village Rd)
Friday Evening Social: 4/12/24 1913 Restaurant 5:30-7:00 PM PT Located inside the Hope Village Hotel Northwest Corner of City of Hope Campus (Duarte Rd and Village Rd)
Event Date:
Sat, 04/13/2024 - 7:45am (EDT)
Bone Marrow Disease(s):
Conference Event Type:
Haploidentical Transplant with Post-Transplant Cyclophosphamide for Acute Myeloid Leukaemia and Myelodysplastic Syndromes Patients: The Role of Previous Lines of Therapy
Journal Title:
Mediterranean Journal of Hematology and Infectious Diseases
Original Publication Date:
Jan 2024
Background: Allogeneic haematopoietic stem-cell transplant is an option, potentially curative, for high-risk acute myeloid leukaemia (AML) and myelodysplastic syndrome (MDS) patients. Post-transplant cyclophosphamide administration allows for the selection of haploidentical donors in patients who are eligible for the procedure but do not have a fully matched donor since it can overcome the HLA barrier.
Bone Marrow Disease(s):