Insider

The Insider is AA&MSDSIF’s print and online (pdf) full color newsletter. Issued several times a year and ranging from 16 to 20 pages, the Insider covers all AA&MDISF program areas, from advocacy and awareness, through patient education and support, to our activities in research and professional education programs. Each issue has details on upcoming events, patient stories, information on our print and web-based patient resources, and much more. For an overview on all the foundation does for patients and families—and the medical and scientific community, keep up with the Insider to keep up with AA&MDSIF.

Spring 2012 - read now

• Scientific Symposium Convenes Experts in Research and Clinical Care
• AA&MDSIF at ASH 2011
• Treating MDS Toolkit and Mobile App for MDS Risk Classification - New Resource for Healthcare Providers
• Standing Up for Your Health Pillar2
• AA&MDSIF 2009 - 2011 Grantees Present Final Reports and 2010 - 2012 Grantees Report on Their Progress
• Patient and Family Conferences
• Explore Interactive Modules on the Online Learning Center
• 10 Questions to Ask When Looking Online for Health Information
• Scholarship Opportunities
• Stories of Hope - Bill Jessee
• Volunteer Vibe
• Communities of Hope

Summer 2011

• See the New AAMDS.org!
• Standing Up For Your Health Pillar 1
• Online Learning Center
• 2011-2013 Research Grants Awarded
• 2011 Regional Conference Series
• 2010 Annual Report
• Stories of Hope - Duane Draper, MDS Survivor
• Volunteer Vibe
• Connect through Communities of Hope

Spring 2011

• 2011 Patient & Family Conferences
• Standing Up For Your Health
• AA&MDSIF Research Studies Report
• Stories of Hope
  • Vincent Rogers
  • Camilo J. Valencia-Sevilla
• AA&MDSIF ASH Symposium
• Build Communities of Hope
• H.R. 640 - Bone Marrow Failure Disease Research and Treatment Act Introduced in Congress
• Volunteer Vibe - Meet Judith Wilhelmy and the Red Hat Society
• Meet our Advocate - Patty Myers: A Survivor's Commitment to Advocacy

Summer 2010

• MDS Patient Survey
  A View into Patient Knowledge,Attitudes and Expectations: Overview
  Diagnosis and Treatment
  Awareness of Disease Fundamentals, Individual Status and Prognosis Needs Improvement
  How Are Expectations Defined and Discussed?
  The Information Exchange – A Two-Way Street
  What Patients Can Learn and Do Next

• Join Us in Chicago and New York City
• Advances in the Understanding and Treatment of Aplastic Anemia: Share with your doctor
• The Importance of Advocacy for Bone Marrow Failure Disease
• Welcome to our 2009 Annual Report & Honor Roll of Donors!  Annual Report
• Our Researchers Report Significant Progress in Their AA&MDSIF-Funded Studies!
• AA&MDSIF 2010 Scientific Symposium
• The AA&MDSIF Peer Support Network – How This Important Resource Can Work for You

Fall 2009

• Future Directions in BMFD Research
• 20 Years: Catalyst for Scientific Careers Saving Lives
• Research Spotlight: Dr. Leslie Biesecker
• NIH Insights into Bone Marrow Failure Disease Research
• Department of Defense Research Program
• Advocacy: Federal Legislation
• Researchers Report
• Awareness and Patient Education