The Insider
is AA&MSDSIF’s print and online (pdf) full color newsletter. Issued several
times a year and ranging from 16 to 20 pages, the Insider covers all AA&MDISF program areas, from advocacy and
awareness, through patient education and support, to our activities in research
and professional education programs. Each issue has details on upcoming events,
patient stories, information on our print and web-based patient resources, and
much more. For an overview on all the foundation does for patients and
families—and the medical and scientific community, keep up with the Insider to keep up with AA&MDSIF.
Summer 2014 - read now
- New Global Resources
- Report on 2014 AA&MDSIF Scientific Symposium
- 2014 Research Grant Recipients
- Leadership Awards
- Treatment Tracking Tools
- Interview with the Expert: Emotional Stress
- Caregiving From a Distance
- Communities of Hope
- Volunteer Vibe - Meet Stephanie Cadell
- Story of Hope - Jamie Lam
Winter 2014 - read now
- New e-resources for Patients
- Coverage of Research
- Innovation Impact Award
- Bone Marrow Failure Disease Scientific Symposium 2014
- Professional Education
- 2013 Grant Recipients
- 2014 Conference and Webinar Plans
- Clinical Trials
- Social Media - Transforming the Way We Communicate
- 2013 By the Numbers
- Volunteer Vibe
- Facts for Life
- Stories of Hope
- PNH Legacy Gift
Summer 2013 - read now
- New Initiatives in Patient and Professional Education
- Strategic Alliance with PNH Research and Support Foundation
- Research and Treatment Retrospective: Opinions from Three Expert Investigators
- 2012 Annual Report
- Facts for Life: Stress - Don't Let It Get to You!
- Volunteer Vibe
- Story of Hope: Heather Putney's Trials (and Travels) with Aplastic Anemia
Fall 2012 - read now
- AA&MDSIF Establishes Groundbreaking MDS Clinical Research Consortium
- Treatment Adherence: Helping You Travel the Sometimes Rough Road of Bone Marrow Failure
Diseases - 2011 Annual Report
- Facts for Life: Should I get a flu shot?
- Volunteer Vibe: The Riveras Find Multiple Ways to Get Involved and Give Back
- Stories of Hope
- Maggie O’Neil - turning grief into actions
- Mike Morrison’s diagnosis and treatment – planning and persistence pay off.
- AA&MDSIF Help Center
Spring 2012 - read now
- Scientific Symposium Convenes Experts in Research and Clinical Care
- AA&MDSIF at ASH 2011
- Treating MDS Toolkit and Mobile App for MDS Risk Classification - New Resource for Healthcare Providers
- Standing Up for Your Health Pillar2
- AA&MDSIF 2009 - 2011 Grantees Present Final Reports and 2010 - 2012 Grantees Report on Their Progress
- Patient and Family Conferences
- Explore Interactive Modules on the Online Learning Center
- 10 Questions to Ask When Looking Online for Health Information
- Scholarship Opportunities
- Stories of Hope - Bill Jessee
- Volunteer Vibe
- Communities of Hope
Summer 2011
- See the New AAMDS.org!
- Standing Up For Your Health Pillar 1
- Online Learning Center
- 2011-2013 Research Grants Awarded
- 2011 Regional Conference Series
- 2010 Annual Report
- Stories of Hope - Duane Draper, MDS Survivor
- Volunteer Vibe
- Connect through Communities of Hope
Spring 2011
- 2011 Patient & Family Conferences
- Standing Up For Your Health
- AA&MDSIF Research Studies Report
- Stories of Hope
- Vincent Rogers
- Camilo J. Valencia-Sevilla
- AA&MDSIF ASH Symposium
- Build Communities of Hope
- H.R. 640 - Bone Marrow Failure Disease Research and Treatment Act Introduced in Congress
- Volunteer Vibe - Meet Judith Wilhelmy and the Red Hat Society
- Meet our Advocate - Patty Myers: A Survivor's Commitment to Advocacy
Summer 2010
- MDS Patient Survey
A View into Patient Knowledge,Attitudes and Expectations: Overview
Diagnosis and Treatment
Awareness of Disease Fundamentals, Individual Status and Prognosis Needs Improvement
How Are Expectations Defined and Discussed?
The Information Exchange – A Two-Way Street
What Patients Can Learn and Do Next
- Join Us in Chicago and New York City
- Advances in the Understanding and Treatment of Aplastic Anemia: Share with your doctor
- The Importance of Advocacy for Bone Marrow Failure Disease
- Welcome to our 2009 Annual Report & Honor Roll of Donors! Annual Report
- Our Researchers Report Significant Progress in Their AA&MDSIF-Funded Studies!
- AA&MDSIF 2010 Scientific Symposium
- The AA&MDSIF Peer Support Network – How This Important Resource Can Work for You
Fall 2009
- Future Directions in BMFD Research
- 20 Years: Catalyst for Scientific Careers Saving Lives
- Research Spotlight: Dr. Leslie Biesecker
- NIH Insights into Bone Marrow Failure Disease Research
- Department of Defense Research Program
- Advocacy: Federal Legislation
- Researchers Report
- Awareness and Patient Education