About AA&MDSIF

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

We are a patient-focused, patient-centered organization, serving patients and families throughout the three phases of bone marrow failure diseases:

• the life changing phase of diagnosis
• the life threatening phase of treatment
• the life long phase of living with a chronic disease

How Can AA&MDSIF Help You?

• Personalized Support from Patient Educators
  Email help@AAMDS.org or call (800) 747-2820.
• Free Educational Materials
  Read the latest medical and treatment information. Get guidance for living well with a bone marrow failure disease.
• Online Learning Center
  View and participate in webinars, webcasts, interviews with experts and interactive learning modules.
• Peer Support Network
  Talk to our trained patient and family member volunteers who can share their treatment experiences and provide emotional support and understanding.
• Patient and Family Conferences
  Attend our conferences. Hear from leading experts and learn from other patients.
• Print and Electronic Newsletters
  Sign up for our Insider and MDS Connection electronic and print publications.  Stay current with research, medical advances and inspirational patient stories.
• Clinical Trials Information
  Looking for a clinical trial? Let us help you.
• Standing Up for Your Health
  Learn how to become a strong advocate for your best health care and become a more powerful patient.
• Communities of Hope
  Join volunteer-led local groups. Working together with AA&MDSIF staff, these groups connect patients and families with each other to provide peer support and information exchange and to raise awareness and support for AA&MDSIF programs.

What Else Does AA&MDSIF Do?

• Funds medical research to find better treatments and cures for aplastic anemia, MDS and PNH.
• Advocates for increased federal funding of bone marrow failure disease research.
• Promotes public awareness of bone marrow failure diseases.
• Educates medical professionals on the most up-to-date information about these diseases, their diagnosis and treatment.

Founded in 1983, AA&MDSIF is celebrating more than 25 years of service as a recognized and respected leader in patient education, advocacy and research. It is supported through individual contributions from grateful patients, families and friends, as well as foundations and corporations.