web exclusive | Page 2 | Aplastic Anemia and MDS International Foundation

web exclusive

Stephen King: Patient, Educator, and Volunteer

Person's Name: 
Stephen King

A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.

 “I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”

Content source: 

Barbara Weinstein - "Being able to help and empower people really appealed to me."

Patient Photo
Person's Name: 
this nurse

At AA&MDSIF, we deeply appreciate the vital role nurses play in patient care – they are wonderful listeners, educators, motivators, and knowledgeable professionals who make a difference every day in the lives of so many patients and families. This past May, in celebration of National Nurses Week, we asked patients to tell us about their favorite nurse. Four different individuals wrote to tell us about one particular nurse - Barbara Weinstein, RN, BSN, CCRP, a Research Nurse Specialist at the National Heart, Lung, and Blood Institute – and what she has meant to them.

Content source: 

A Rare Case of Aplastic Anemia Later in Life Doesn’t Stop Al Meyer

Person's Name: 
Al Meyer

I grew up in Louisiana - born in New Orleans and raised in Lafayette. I joined the Army, and went to Seattle and worked at Madigan General Hospital where I met my wife. I was then sent to Vietnam. After I returned, I worked for a bank in Seattle for 16 years, becoming a vice president and manager. I helped finance an auto auction as part of this job, and as a result, I fell in love with the car businesses.  I was accepted for a Ford training program that lasted for two years at a Seattle Ford dealership.

Content source: 
Bone Marrow Diseases: 

Brittany Springer – Aplastic Anemia Patient “Just Focused on Beating It”

Person's Name: 
Brittany Springer

In February of 2011 I was 22-years-old and attending Orange Coast College. One day I began to notice that I was bruising easily. My legs were covered in bruises by the time I went to my doctor.  The doctor told me I was probably anemic and run down due to my work and school schedule. She ran a regular CBC blood test. 

Content source: 
Bone Marrow Diseases: 

Yahn Family Raises Over $400,000 for Research

Patient Photo
Person's Name: 
Torry Yahn

It’s a terrible thing to lose a child. When 20-year-old Torry Yahn made her final request, “Mom, find out why” to her mother JoAnn, there was only one thing left to do. JoAnn took her grief and turned it into an advocacy effort that has raised over $415,000 for bone marrow

Content source: 
Bone Marrow Diseases: 

Kathryn (Kate) Bauer, Retired MDS Patient Living Life to the Fullest Since Transplant

Patient Photo
Person's Name: 
Kathryn Bauer

In Kate's words:

I retired from Dun & Bradstreet, after 35 years of working all over the US and Europe as a business analyst and Vice President of Operations and Data Acquisition.  I was living the life I had always aspired to -- traveling, volunteering for a number of non-profit organizations, taking the occasional consulting job, enjoying a few classes at the local college, and just having fun.

Content source: 
Bone Marrow Diseases: 

Maggie O'Neil, Los Angeles Walk Committee

Patient Photo
Person's Name: 
Pat Reep

I became involved in the Hope, Steps & A Cure Walk after my mom passed away from MDS in March 2012.  I was overcome with many emotions (sadness, anger, confusion, shock, etc), and I wanted to channel those into doing something good.  So I "Googled" and found the Hope Steps & A Cure Walk, and the most incredible part was that the walk was to be held the following month (April) in my hometown of Long Beach!  I immediately jumped on board and in that next month Team Pat Reep raised $17,000 for AA&MDSIF!  At the walk, we had more than 50 walkers show up wearing

Content source: 
Associated Event: 
Bone Marrow Diseases: