Outside Support Group | Aplastic Anemia and MDS International Foundation

Outside Support Group

Support group facilitated by medical facilities or other organizations (not AAMDSIF).

NORD PNH Patient Meeting - Boston

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease. These meetings for PNH patients span Friday evening to Saturday.

Event Date: 
Fri, 12/02/2016 - 7:00pm to Sat, 12/03/2016 - 2:30pm
Community Event Type: 

NORD PNH Patient Meeting - San Antonio

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease. These meetings for PNH patients span Friday evening to Saturday.

Event Date: 
Fri, 11/04/2016 - 7:00pm to Sat, 11/05/2016 - 2:30pm
Community Event Type: 

NORD PNH Patient Meeting - Seattle

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease. These meetings for PNH patients span Friday evening to Saturday.

Event Date: 
Fri, 09/30/2016 - 7:00pm to Sat, 10/01/2016 - 2:30pm
Community Event Type: 

NORD PNH Patient Meeting - New Orleans

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease. These meetings for PNH patients span Friday evening to Saturday.

Event Date: 
Fri, 09/16/2016 - 7:00pm to Sat, 09/17/2016 - 2:30pm
Community Event Type: 

NORD PNH Patient Meeting - Baltimore

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease. These meetings for PNH patients span Friday evening to Saturday.

Event Date: 
Fri, 06/24/2016 - 7:00pm to Sat, 06/25/2016 - 2:30pm
Community Event Type: 

NORD PNH Patient Meeting - Chicago

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease. These meetings for PNH patients span Friday evening to Saturday.

Event Date: 
Fri, 06/10/2016 - 7:00pm to Sat, 06/11/2016 - 2:30pm
Community Event Type: