paroxysmal nocturnal hemoglobinuria (PNH) | Page 14 | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

2015 Boston Patient and Family Conference

Lead Photo
Are you a newly diagnosed patient, a long-term survivor, a caregiver, or friend of a patient?  This one-day regional conference on Diagnosis, Treatment, and Managing the New Normal will have something for you.  Join more than 150 patients and families from your area, and around the nation, as we bring you face-to-face with leading medical experts and connect you to other patients and families.
 
Bring a buddy to “Beantown” for the 2015 regional patient and family conference.
Event Date: 
Sat, 09/19/2015 -
8:30am to 5:00pm
Conference Event Type: 

2015 Cleveland Patient and Family Conference

Lead Photo
Are you a newly diagnosed patient, a long-term survivor, a caregiver, or friend of a patient?  This one-day regional conference on Diagnosis, Treatment, and Managing the New Normal will have something for you.  Join more than 150 patients and families from your area, and around the nation, as we bring you face-to-face with leading medical experts and connect you to other patients and families.
 
Meet us in “Believe-land” for the 2015 regional patient and family conference.
Event Date: 
Sat, 05/02/2015 -
8:30am to 5:00pm
Conference Event Type: 

2015 Baltimore Patient and Family Conference

Lead Photo
Are you a newly diagnosed patient, a long-term survivor, a caregiver, or friend of a patient?  This one-day regional conference on Diagnosis, Treatment, and Managing the New Normal will have something for you.  Join more than 150 patients and families from your area, and around the nation, as we bring you face-to-face with leading medical experts and connect you to other patients and families.
Join us in “Charm City” for the 2015 regional patient and family conference.
Event Date: 
Sat, 03/28/2015 -
8:30am to 5:00pm
Conference Event Type: 

Hematopoietic stem cell transplantation for aplastic anemia and paroxysmal nocturnal hemoglobinuria: current evidence and recommendations

Author(s): 
Marotta S, Pagliuca S, Risitano AM
Primary Author: 
Marotta S
Journal Title: 
Expert Rev Hematol
Original Publication Date: 
Oct 2014

Deep sequencing reveals stepwise mutation acquisition in paroxysmal nocturnal hemoglobinuria

Author(s): 
Shen W, Clemente MJ, Hosono N, Yoshida K, Przychodzen B, Yoshizato T, Shiraishi Y, Miyano S, Ogawa S, Maciejewski JP, Makishima H
Primary Author: 
Shen W
Journal Title: 
J Clin Invest
Original Publication Date: 
Sep 2014

Clinical Trials and Children

If your child has a bone marrow failure disease and you are considering a clinical trial, there are important things you need to know. For example, clinical trials in children, by law, must provide the potential for at least a minimal benefit. This section provides information and guidelines to help you make an informed choice about clinical trial participation for your child.