myelodysplastic syndromes (MDS) | Page 3 | Aplastic Anemia and MDS International Foundation

myelodysplastic syndromes (MDS)

Chicago MDS Community Connection Support Group Meeting

The Chicago MDS Community Connection support group will hold its monthly meeting on Tuesday, August 28, 2018 at 1:30 pm at the Northwest Community Hospital in the Radiation Oncology Department in the lower level of the hospital.The group meets on the fourth Tuesday of each month.

Come meet other MDS patients and families in your own town who are going through the same thing as you.

Event Date: 
Tue, 08/28/2018 -
1:30pm to 3:00pm
Bone Marrow Diseases: 
Community Event Type: 

Chicago MDS Community Connection Support Group Meeting

The Chicago MDS Community Connection support group will hold its monthly meeting on Tuesday, July 24, 2018 at 1:30 pm at the Northwest Community Hospital in the Radiation Oncology Department in the lower level of the hospital.The group meets on the fourth Tuesday of each month.

Come meet other MDS patients and families in your own town who are going through the same thing as you.

The group is facilitated by Kim Jensen, LCSW, OSW-C and Bozena Vargo, RN. Call (847) 618-4YOU or email hconnection@nch.org, if you need more information.

Event Date: 
Tue, 07/24/2018 -
1:30pm to 3:00pm
Bone Marrow Diseases: 
Community Event Type: 

Chicago MDS Community Connection Support Group Meeting

The Chicago MDS Community Connection support group will hold its monthly meeting on Tuesday, June 26, 2018 at 1:30 pm at the Northwest Community Hospital in the Radiation Oncology Department in the lower level of the hospital.The group meets on the fourth Tuesday of each month.

Come meet other MDS patients and families in your own town who are going through the same thing as you.

The group is facilitated by Kim Jensen, LCSW, OSW-C and Bozena Vargo, RN. Call (847) 618-4YOU or email hconnection@nch.org, if you need more information.

Event Date: 
Tue, 06/26/2018 -
1:30pm to 3:00pm
Bone Marrow Diseases: 
Community Event Type: 

Chicago MDS Community Connection Support Group Meeting

The Chicago MDS Community Connection support group will hold its monthly meeting on Tuesday, May 22, 2018 at 1:30 pm at the Northwest Community Hospital in the Radiation Oncology Department in the lower level of the hospital.The group meets on the fourth Tuesday of each month.

Come meet other MDS patients and families in your own town who are going through the same thing as you.

The group is facilitated by Kim Jensen, LCSW, OSW-C and Bozena Vargo, RN. Call (847) 618-4YOU or email hconnection@nch.org, if you need more information.

Event Date: 
Tue, 05/22/2018 -
1:30pm to 3:00pm
Bone Marrow Diseases: 
Community Event Type: 

Chicago MDS Community Connection Support Group Meeting

The Chicago MDS Community Connection support group will hold its monthly meeting on Tuesday, April 24, 2018 at 1:30 pm at the Northwest Community Hospital in the Radiation Oncology Department in the lower level of the hospital.The group meets on the fourth Tuesday of each month.

Come meet other MDS patients and families in your own town who are going through the same thing as you.

The group is facilitated by Kim Jensen, LCSW, OSW-C and Bozena Vargo, RN. Call (847) 618-4YOU or email hconnection@nch.org, if you need more information.

Event Date: 
Tue, 04/24/2018 -
1:30pm to 3:00pm
Bone Marrow Diseases: 
Community Event Type: 

Chicago MDS Community Connection Support Group Meeting

The Chicago MDS Community Connection support group will hold its monthly meeting on Tuesday, March 27, 2018 at 1:30 pm at the Northwest Community Hospital in the Radiation Oncology Department in the lower level of the hospital.The group meets on the fourth Tuesday of each month.

Come meet other MDS patients and families in your own town who are going through the same thing as you.

The group is facilitated by Kim Jensen, LCSW, OSW-C and Bozena Vargo, RN. Call (847) 618-4YOU or email hconnection@nch.org, if you need more information.

Event Date: 
Tue, 03/27/2018 -
1:30pm to 3:00pm
Bone Marrow Diseases: 
Community Event Type: 

2018 Frontier Fiesta March for Marrow 5K Run & Walk Houston

Each year we partner with the Frontier Fiesta to put together an unforgettable morning dedicated to raising awareness about

Event Date: 
Sat, 03/24/2018 -
8:00am to 12:00pm
Community Event Type: 

2018 March for Marrow 5K Run & Walk Los Angeles

Join us for the 8th Annual March for Marrow 5K Run & Walk and help us find a cure for

Event Date: 
Sat, 04/28/2018 -
6:30am to 12:00pm
Community Event Type: 

I Was Alone With MDS Until I Connected With Others on Social Media

Person's Name: 
Jane Biehl, PhD

I sat quietly in the oncologist’s office. The doctor confirmed that my diagnosis was MDS and calmly stated, “The average survival term for your kind of MDS is 104 months.” I felt the room spin.

 

I never have been healthy, and suffered from upper respiratory infections all my life. Kidney and bladder infections plagued me all through college, and I have had a severe hearing loss since birth. I had been diagnosed in 1986 with an IGA deficiency, meaning that I had insufficient immunity although I was treated symptomatically with antibiotics when needed.

 

Bone Marrow Diseases: 

Haploidentical Hematopoietic Cell Transplant with Post-Transplant Cyclophosphamide and Peripheral Blood Stem Cell Grafts in Older Adults with Acute Myeloid Leukemia or Myelodysplastic Syndrome

Author(s): 
Slade M, DiPersio J, Westervelt P, Vij R, Schroeder M, Romee R
Primary Author: 
Slade M
Journal Title: 
Biology of Blood and Marrow Transplantation
Original Publication Date: 
Nov 2017

Many hematologic malignancies are diseases of aging, and the use of hematopoietic cell transplant (HCT) is growing rapidly among older adults. Modern post-transplant