Newsstand | Page 14 | Aplastic Anemia and MDS International Foundation

Newsstand

Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

Brotherly love comes with a BMT match

Originally Published: 06/11/2016
BUFFALO, N.Y. (WIVB) — About a year ago a Kenmore West high school student was diagnosed with a bone marrow failure disorder that could progress into leukemia. Conner Vollmer is a 16-year-old, an outdoorsy kid who enjoys hunting and riding his ATV, but he’s battling a rare blood disease called myelodysplastic syndrome. It’s a group of diseases that affects normal blood cell production in the bone marrow. “It’s a really rare disease, it’s like very rare that it happened, but there’s a cure for it,” said Vollmer. The only known cure is a bone marrow transplant. Before the transplant, Connor...

Foundation Update - June 2016

Originally Published: 06/10/2016
Foundation Update Newsletter - June 2016   Presenting Our 2016 Research Grant Recipients   For over 25 years, AAMDSIF has provided research grants totaling in excess of $4 million to an international group of more than 70 researchers to help advance the understanding and treatment of aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH). The two-year grants have helped create new insights into the causes and therapeutic approaches for these diseases. These profiles present the newest group...

Announcing AAMDSIF 2016 Research Awards

Originally Published: 06/09/2016
We are pleased to be able the recipients of the 2016 research awards in bone marrow failure. This year we had dozens of worthy applications and our committee worked diligently to review and score each proposal. The following grantees will each receive an award in the amount of $30,000 to be used to further their research efforts in aplastic anemia, MDS or PNH. In the category of MDS, Tushar Bhagat, Ph.D., a Research Associate at Albert Einstein College of Medicine, received an award for his project; Targeting stromal mediated WNT activation in MDS transformation. Summary Myelodysplastic...

How Much Do You Want to Know About Your Cancer?

Originally Published: 06/01/2016
Your appointment is at 2:00 on a Tuesday afternoon. It’s your first visit to the cancer center. You’re probably wondering what we are going to say to you. A tumor was recently detected in your left lung and has spread to your bones and liver. A biopsy was performed. We’re meeting you for the first time, soon after your primary care doctor, or surgeon, has sat down with you, or called, to tell you some terrible news: You have cancer. We are the oncologists, and we want to help. We want to discuss your diagnosis, what it means and what the options are for treatment. We’d like to give you a...

MDS Update - June 2016

Originally Published: 06/01/2016
MDS Update - June 2016

Heros Unite for #RyanStrong

Originally Published: 05/24/2016
The movie stars of Captain America and the Avengers visited a San Diego teen who’s waging his own war against the forces of evil. Ryan Wilcox has a rare blood cancer – myelodysplastic syndromes (MDS) – and he’s also a huge fan of these comic-book characters. Imagine his surprise when Gwyneth Paltrow, Robert Downey Jr. and Chris Evans decided to fly in and cheer him up. Watch the story about #RyanStrong and learn about MDS at www.aamds.org.

Aplastic Anemia Update - May 2016

Originally Published: 05/20/2016
Aplastic Anemia Update - May 2016

Instilling a Policy of Charitable Giving

Originally Published: 05/18/2016
One Degree Capital is a small business lender in Occoquan, Virginia, making loans from $10,000 to $200,000 to new and established local businesses. CEO Rod Loges also writes a weekly business column for a local newspaper in which he recently told the story of a moving experience he had with his young school-age daughter. He saw that she was making multiple lunches every morning. When he asked why, she told him that a classmate’s mom was so seriously ill that she couldn’t even make school lunches for her own children. This got Loges thinking about how the business community could help...

March for Marrow Scores in L.A.

Originally Published: 05/17/2016
March for Marrow Scores in L.A. By Martha Crews, AAMDSIF Community Development Officer Those who know me well might say that I’m slightly obsessed with palm trees. Since I live in Maryland, the only time I see them is when I’m in warm, sunny places that make me happy. And one of those places is Long Beach, California, when I’m there for our annual Los Angeles walk.   I love our L.A. walk for so many reasons, but the primary reason is the people I work with who help make this such a fun and successful event. Last month was our 7th Annual Los Angeles March for Marrow 5K Run and Walk and, over...

Farid Boulard of Memorial Sloan Kettering Cancer Center On Care Givers

Originally Published: 05/13/2016
“The caretakers play a crucial role, but there’s no way to predict how a parent will react to this. Sometimes they are the best helpers. They come in wanting to win. They say, ‘We’re going to beat the crap out of this thing.’ And that positive attitude flows down to the child. ‘I can’ becomes ‘we can.’ But sometimes the parents give up before treatment begins. You see it in their eyes. The battle is lost before we start. They say ‘I can’t,’ and that becomes ‘we can’t.’ The child becomes defeated and that hurts us. Because the child is the captain of this team and we need our captain to be...