April 23-29 is National Volunteer week – days of acknowledgement set aside each year for organizations to honor those who give selflessly of their time and talent to support the causes they care about.
To help us accomplish many of our programs, events and services for the bone marrow failure community, we rely heavily on our dedicated volunteer base of over 500 patients, families and health professionals. Here’s who they are and what they do to keep AAMDSIF moving forward.
Medical Advisory Board (MAB)
This outstanding group of over 20 medical and research professionals are leaders in their fields. Their scientific guidance is crucial to our production of high-quality vetted information on the latest thinking, research and best practices in hematology and oncology.
Our Ambassadors are patients, family members, and friends just like you who have contributed their time and talents to spread public awareness and help raise funds for us. Their engagement year after year with members of their own local community has grown the ranks of our volunteer network, and their work as the Foundation’s representatives is critical to our success. Whether they are staging March for Marrow walks or other fun local events, they are making our work possible in so many ways.
Patient Education Council (PEC)
Consisting of doctors, nurses, patient educators, patients and caregivers, the Patient Education Council was created in 2008, serving as a resource in the development and review of our patient education materials, programs and services. PEC review insures that patients and their families receive the most accurate, reliable and up-to-date information we can provide.
Patient Advisory Council on Clinical Trials (PACCT+)
This recently formed council is made of almost 20 specially-trained patients dedicated to contributing to the research process. They are positioned to directly assist researchers by bringing their patient perspective to bone marrow failure research.
We don’t take our dedicated community of volunteers for granted – and this month’s National Volunteer Week gives us yet another occasion to thank them for their service to AAMDSIF.