About Us

Our Mission and History

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

How Can AA&MDSIF Help You?

Personalized Support from Patient Educators
Email help@AAMDS.org or call (800) 747-2820.
Free Educational Materials
Read the latest medical and treatment information. Get guidance for living well with a bone marrow failure disease.
Online Learning Center
View and participate in patient education programs presented by leading experts.
Peer Support Network
Talk to our trained patient volunteers who can share their treatment experiences and provide emotional support and understanding.
Annual Patient and Family Conferences
Attend our conferences. Hear from leading experts. Learn from other patients.
Newsletters and eInsider
Receive important medical and research updates. Read inspirational patient stories. Learn about our advocacy and awareness activities.
Clinical Trials Information
Looking for a clinical trial? Let us help you.

What Else Does AA&MDSIF Do?

Funds medical research to find better treatments and cures for aplastic anemia, MDS and PNH.
Advocates for increased federal funding of bone marrow failure disease research.
Promotes public awareness of bone marrow failure diseases.
Educates medical professionals on the most up-to-date information about these diseases, their diagnosis and treatment.Founded in 1983, AA&MDSIF is celebrating more than 25 years of service as a recognized and respected leader in patient education, advocacy and research. It is supported through individual contributions from grateful patients, families and friends, as well as foundations and corporations.

Staff

Board of Directors and Medical Advisory Board

Last Modified: November 2009