About Us

Our Mission and History

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is an independent nonprofit organization whose mission is to support patients, families, and caregivers coping with Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases.

The Foundation:
 
• Provides educational materials, medical information, and access to peer support via a global network of volunteers who offer hope to those struggling with bone marrow failure diseases
• Builds awareness and knowledge of bone marrow failure diseases among medical and healthcare professionals and the general public
• Raises public and private support for research to improve patient treatments, restore patients to health, and ultimately, to find cures for bone marrow failure diseases

The Foundation's ongoing commitment and dedication to this mission is based on the organization's core values of fairness, integrity, transparency, respect, and responsibility.
 
Founded in 1983 by patients, families and doctors, the AA&MDSIF has grown into an international organization.  For over two decades, our services have been critically important to hundreds of thousands of people who have been devastated by bone marrow diseases.  

The AA&MDSIF is supported largely through individual contributions from grateful families.  Some funding comes from grants from the National Institutes of Health and donations from pharmaceutical companies.

To help further our mission, click here.

Last Modified: April 4, 2007