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Medical ResourcesYou can learn more about many aspects of living with bone marrow diseases through the following links. Read the article Finding Reliable Health Information on the Internet for helpful guidelines in searching the internet. Blood & transplant information Dictionaries & Encyclopedias Drug information National Institutes of Health Physician & hospital directories Professional organizations Related disorders Blood & transplant information
Understanding your complete blood count -a patient information pamphlet from the NIH. Lab Tests Online Cord Blood Donor Foundation National Bone Marrow Transplant Link Dictionaries & EncyclopediasMedlinePlus medical encyclopediaOver 4,000 articles about diseases, tests, symptoms, injuries, and surgeries. Also links to a searchable medical dictionary. CancerWeb online medical dictionary Sponsored by the CancerWEB project. Merriam Webster medical dictionary Part of Intelihealth sponsored by Aetna and Harvard Medical Schools. Drug informationFood & Drug Administration (FDA) Office of Orphan Products Development National Institutes of HealthMEDLINEPlusOnline database by National Library of Medicine and NIH. PubMed PubMed is a service of the National Library of Medicine that includes over 16 million citations from MEDLINE and other life science journals. National Cancer Institute (NCI) 800.422.6237 Cancer-related information of all kinds. National Center for Complimentary and Alternative Health (NCCAM) 888.644.6226 National Heart, Lung and Blood Institute (NHLBI) 301.592.8573 Information for professionals and the general public about heart and vascular diseases, lung diseases, blood diseases and resources, and sleep disorders. Office of Rare Diseases 301.402.4336 Information center on 6,000 designated rare diseases. ToxNet 888.FINDNLM Databases on toxicology, hazardous chemicals, environmental health, and toxic releases. Physician & hospital directories American Hospital DirectoryOnline database with information on over 6,000 hospitals. American Society of Hematology - Find a Hematologist 202.776.0544 Service offered by ASH for patients looking for doctors. Hospice Directory 800.658.8898 National Hospice and Palliative Care organizational database. U.S. News: Hospital Directory Every year US News rates the top hospitals. Veterans Health Administration 800.827.1000 Veterans can locate nearest facility and learn about their medical options. Who's Certified 847.491.9091 Database sponsored by the American Board of Medical Specialties. Professional organizationsAmerican Society of Hematology Related disordersAmerican Cancer Society800.ACS.2345 Largest advocacy & support group for cancer patients. Cooley's Anemia Foundation 800.522.7222 Advocacy group for genetic blood disorder thalassemia. Diamond Blackfan Anemia Fanconi Anemia 800.828.4891 Inherited Bone Marrow Failure Syndromes (NCI) Project by the National Cancer Institute to study rare inherited BMF syndromes. Iron Disorders Institute 864.292.1175 Source of information for any iron disorder. Leukemia & Lymphoma Society 800.955.4572 The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. NORD (National Organization of Rare Disorders) 800.966.6673 Advocacy & support group for rare diseases. |
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