International Resources

In order to get the best possible care it is important to find a doctor who is an expert in treating bone marrow diseases.  The best place to begin looking for a doctor is usually a teaching hospital affiliated with a medical school.  Ask for their hematology department and if they have a doctor who is an expert in your disease.  If you are having trouble locating a teaching hospital either contact your country's medical or physician association; e.g. Indian Medical Association or a cancer center or association located in your country or region.

Disease Information
Bone Marrow Transplant Information

 

Disease Information

European Organisation for Rare Diseases
www.eurordis.org
+33 (1) 56.53.52.10

Orphanet
www.orpha.net
A database that provides information in Spanish, English, German and other languages about more than 950 rare diseases and orphan drugs.

Canada

Aplastic Anemia & Myelodysplasia Association of Canada
www.aamac.ca
888.840.0039

Canadian Organization of Rare Disorders
www.cord.ca
877.302.7273

France

Hemoglobinurie Paroxystique Nocturne & Aplasie Medullaire
hpn.site.voila.fr/
01.48.36.13.41

Germany

Aplastische Anamie -PNH
www.aa-pnh.info/

New Zealand

Leukaemia and Blood Foundation
www.leukaemia.org.nz/
0800.15.10.15

New Zealand Organisation for Rare Disorders
www.nzord.org.nz
+64 4 566 7707

Scandanavia

Nordic-MDS Group
www.nordicmds.org
Stockholm
+46-8-774 87 25

United Kingdom

Wellchild Families
www.wellchild.org.uk/
0845 458 8171

 

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Bone Marrow Transplant Information

Bone Marrow Donors Worldwide
www.bmdw.org
Tel: +31-71-5685300
Bone Marrow Donors Worldwide (BMDW) is the continuing effort to collect the HLA phenotypes of volunteer stem cell donors and cord blood units, and is responsible for the co-ordination of their worldwide distribution. Participants are 58 stem cell donor registries from 43 countries, and 38 cord blood banks from 21 countries.

World Marrow Donor Association
www.worldmarrow.org
Netherlands
Tel. +31-71-568 5304
email: wmda@europdonor.nl
The World Marrow Donor Association (WMDA) strives to improve and simplify stem cell donation for donors and patients worldwide

National Bone Marrow Program
www.marrow.org
Interpreters Available - Outside US call 1.612.627.8140

Canadian Blood and Marrow Transplant Group
www.cbmtg.org
604.874.4944
Multi-disciplinary organization providing leadership and promoting excellence in patient care, research and education in the fields of blood and marrow transplantation (BMT).

South Asian Marrow Association of Recruiters (SAMAR)
Serves patients diagnosed with leukemia and other fatal blood disorders from the South Asian community (people from India, Afghanistan, Bangladesh, East Africa, Guyana, Nepal, Pakistan, Sri Lanka, West Indies) and other minority groups who are in search of Blood Stem Cell /Marrow donors.
www.samarinfo.org
(718) 592-0821

 

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_{updated 10/12/2006}