Sunday, July 27, 2008

10:00 am

Registration

PRE-CONFERENCE SESSIONS

2:00 pm

Aplastic Anemia 101

3:00 pm

MDS 101

4:00 pm

PNH 101

Awareness 101: Get Involved to Raise Awareness & Funds

CONFERENCE OFFICIALLY BEGINS

6:00 pm

Evening Reception (heavy hors d'oeuvres)

7:00 pm

General Session: NIH Advancements in Bone Marrow Failure Diseases

Monday, July 28, 2008

7:30 am

Registration (continues)

8:00 to 9:00 am

Breakfast

9:00 to 10:00 am

General Session: Getting the Correct Diagnosis and Why It Matters

10:00 to 10:15 am

BREAK

10:15 am 12:00 pm

Aplastic Anemia: Current Thinking on the Disease, Diagnosis, and Treatment

MDS: Current Thinking on the Disease, Diagnosis, and Treatment

PNH: Current Thinking on the Disease, Diagnosis, and Treatment

12:00 pm

Lunch  (Concurrent: Special Lunch for Children & Parents)

1:30 to 2:30 pm

Transfusions: Everything You've Always Wanted to Know but Were Afraid to Ask

Transplants: Understanding your Options

Growth Factors: Risks, Benefits and Insurance Coverage

Thrombosis: Debates in Prevention and Treatment

For Kids Only: Children's Program (Part 1)

2:30 to 2:45 pm

BREAK

2:45 to 3:45 pm

Transfusions: Everything You've Always Wanted to Know but were Afraid to Ask

Transplants: Understanding Your Options

Growth Factors: Risks, Benefits and Insurance Coverage

For Kids Only: Children's Program (Part 2)

3:45 to 4:00 pm

BREAK

4:00 to 5:30 pm

MDS Support Workshop for Newly Diagnosed Patients

MDS Support Workshop for Long-Term Patients

PNH Support Workshop

Aplastic Anemia Support Workshop

Parents of Pediatric Patients Support Workshop (4:00 to 5:00 pm; parents join children at 5:00 pm)

Spouse and Partner Support Workshop

Children's Program (Part 3)

Tuesday, July 29, 2008

7:30 to 8:30 am

Breakfast

8:30 to 9:30 am

General Session: Bone Marrow Failure Disease: What We Know About Who Gets It and Why

9:30 to 9:45 am

BREAK

9:45 to 10:45 am

Lifestyle Issues and Bone Marrow Failure Diseases

Insurance Coverage for Your Disease: Know Your Rights

Living Well with Bone Marrow Failure Diseases

Pediatric Issues (Part A)

10:45 to 11:00 am

BREAK

11:00 to 12:00 am

Iron Overload: Prevention, Diagnosis and Treatment

Insurance Coverage for Your Disease: Know Your Rights

Surfing for Your Health: The Internet and Bone Marrow Failure Diseases

Pediatric Issues (Part B)

12:00 to 1:45 pm

Lunch: Advocacy 101 (1 hour Program begins at 12:30)

2:00 to 3:00 pm

Iron Overload: Prevention, Diagnosis and Treatment

Clinical Trials: An Option to Explore

Surfing for Your Health: The Internet and Bone Marrow Failure Diseases

Living Well with Bone Marrow Failure Diseases

3:00 to 3:15 pm

BREAK

3:15 to 4:15 pm

General Session: Current Research: Where Is It Going?

4:15 to 5:15 pm

General Session:  Advocacy 201 (for those going to Capitol Hill)

6:00 to 6:45 pm

General Reception

7:00 to 9:00 pm

25^th Anniversary Celebration and Dinner

Awards: Leader in Science, Leader in Service, Leader in Philanthropy

Wednesday, July 30, 2008

9:00 am to 5:00 pm

Capitol Hill Advocacy Day