Global Support Network

You are not alone!

Because bone marrow diseases are so rare, it is often difficult to get in touch with other patients.  We can help by putting you in touch with other patients and families also battling these diseases. 

The AA&MDSIF Global Support Network is made up of patients and family members willing to share their treatment experiences, physical and lifestyle challenges, and emotional aspects of coping with aplastic anemia, myelodysplastic syndromes, and PNH.  These volunteers are of all ages, from all walks of life, and from neighborhoods all over the world.

Our volunteers know the importance of networking with other patients, spouses, family members, and loved ones.  Making friends with an AA&MDSIF volunteer is a great way to gather information, resolve special issues, receive emotional support, and make friends. 

To talk to a volunteer:

CALL 800.747.2820 and we can give you contacts. Names and phone numbers cannot be faxed or given out via e-mail to protect the privacy and confidentiality of our volunteers.

Or click here To Become a Volunteer

^{Last Modified: October 30, 2006}