Presentations for Indianapolis Patient and Family Conference

In an effort to be more "green" and environmentally friendly, all presentation handouts are available online only. On this page you will find presentations you may wish to download and print for the sessions you plan to attend at the Conference. Just click on any blue hyperlink and you will be able to view and print a pdf document. We will continue to add session handouts as they become available, so be sure to check this page often for additional handouts.

DAY	TIME	SESSION NAME	PRESENTER
FRIDAY	2:00pm-2:45pm	PNH 101	Carlos M. DeCastro, III, MD
	3:00pm-3:45pm	MDS 101	Gail J. Roboz, MD
	4:00pm-4:45pm	Aplastic Anemia 101	David Margolis, MD
	7:00 pm-8:00pm	The Rollercoaster of Chronic Illness: How to Add Joy to the Ride Handout 1 - Medical Form Handout 2 - Symptoms of Depression Handout 3 - Resources	Ann Steiner, PhD, MFT
SATURDAY	8:15am-8:50am	Fundamentals of Hematology and Bone Marrow Failure Diseases	David Steensma, MD, FACP
	9:00am-10:45am	Aplastic Anemia: Current Thinking on the Disease, Diagnosis, and Treatment	Neal Young, MD
		MDS: Current Thinking on the Disease, Diagnosis, and Treatment Part 1 Part 2	David Steensma, MD, FACP Gail J. Roboz, MD
		PNH: Current Thinking on the Disease, Diagnosis, and Treatment Part 1 Part 2	Carlos M. DeCastro, III, MD Jaroslaw Maciejewski, MD, PhD
	11:00am-12:00pm	Clinical Trials: An Option to Consider Part 1 Part 2	Barbara Weinstein, RN, BSN, CCRP Olga Nunez, RN, BSN
		Iron Overload: Prevention, Diagnosis, and Treatment	David Steensma, MD, FACP
		Peripheral Blood Stem Cell and Bone Marrow Transplantation: Understanding Your Options	H. Joachim Deeg, MD
		PNH and Your Health Insurance Worksheet	Kevin Lucia, MHP, JD Penni Potter-Perez, JD
	1:30pm-2:30pm	Aplastic Anemia and Your Health Insurance Worksheet	Kevin Lucia, MHP, JD Penni Potter-Perez, JD
		Blood Transfusions and Growth Factors: A Closer Look at Risks, Benefits and Options Part 1 Part 2	Susan Carson, RN, MSN, CPNH Gail J. Roboz, MD
		A Deeper Look at PNH: Understanding the Complement Cascade and Hemolysis	Jaroslaw Maciejewski, MD, PhD
		Iron Overload: Prevention, Diagnosis and Treatment	David Steensma, MD, FACP
	2:45pm-3:45pm	Blood Transfusions and Growth Factors: A Closer Look at Risks, Benefits and Options Part 1 Part 2	Susan Carson, RN, MSN, CPNH Gail J. Roboz, MD
		Clinical Trials: An Option to Consider Part 1 Part 2	Barbara Weinstein, RN, BSN, CCRP Olga Nunez, RN, BSN
		MDS and Your Health Insurance Worksheet	Kevin Lucia, MHP, JD Penni Potter-Perez, JD
		Peripheral Blood Stem Cell and Bone Marrow Transplantation: Understanding Your Options	H. Joachim Deeg, MD
SUNDAY	8:15-8:50am	Advances in Treatment: Emerging Therapies for Bone Marrow Failure Diseases	Ronald Paquette, MD
	9:00am-10:00am	Aplastic Anemia: Long-Term and Post-Treatment Issues	Ronald Paquette, MD
		MDS: Long-Term and Post-Treatment Issues	Gail J. Roboz, MD
		PNH: Long-Term and Post-Treatment Issues	Carlos M. DeCastro, III, MD
	10:15am-11:15am	Beating Fatigue	Lillian Nail, PhD, RN, FAAN
		Communication Tips for Better Living with Bone Marrow Failure Disease Handout 1 - Tools for Change Handout 2 - Pain/Energy Price Index	Ann Steiner, PhD
		Complementary and Alternative Therapies: Myths, Realities and Opportunities Handout 1 - Information on the Web	Brent Bauer, MD
		Intimacy, Sexuality and Bone Marrow Failure Disease	Isabel Schuermeyer, MD
	11:30am-12:30pm	Beating Fatigue	Lillian Nail, PhD
		Communication Tips for Better Living with Bone Marrow Failure Disease Handout 1 - Tools for Change Handout 2 - Pain/Energy Price Index	Ann Steiner, PhD, MFT
		Complementary and Alternative Therapies: Myths, Realities and Opportunities	Brent Bauer, MD
		Intimacy, Sexuality and Bone Marrow Failure Disease	Isabel Schuermeyer, MD
	12:30-2:15pm	Survivors Celebration Keynote Address	Ruben A. Mesa, MD, FACP