Community Events

Post Your Listing. For more information or to add an event to our calendar, please call 800.747.2820 or send an email to John Huber at huber@aamds.org   

Plan a Community Event.  Click here to find out how to plan a community event.

This page of our website is provided as courtesy to those who are working to raise funds to help the Foundation. The activities listed on this page are for general information only and do not represent endorsement or recommendation by the Aplastic Anemia & MDS International Foundation, Inc. (AA&MDSIF). These activities and events are completely independent from the AA&MDSIF. AA&MDSIF is not acting as an agent or representative of any individual or business posting notices or advertisements on this website and does not assume any legal liability or responsibility for the products or service offered hereby. AA&MDSIF does not organize, manage or oversee any activities or accounting practices performed by these individual businesses. In no event shall AA&MDSIF be liable for any compensatory, special, direct, incidental, indirect, consequential or exemplary damages or any damages whatsoever resulting from the use of products or services offered on this website, whether in action of contract, tort or otherwise, arising out of or in connection with the use of the information on this website.

Upcoming events

Friday, May 16th, 2008: Bowling for PNH at 7:00 PM Palatine, Illinois

Laura Moeller's daughter was diagnosed with PNH in December 2006. Laura and her family and friends will be having a fun night of bowling, with all proceeds going to the AA&MDSIF.

To support Laura and her family at her first endeavor and to help AA&MDS help others with PNH you can make a donation online in honor of the Moeller Family, or you can call AA&MDS toll free at 800-747-2820 to make your donation.

For more information on the event you can contact Laura Moeller at 847-253-6575.

Saturday, June 7th, 2008: Fred Hutchinson Cancer Research Center to Hold Patient Conference on Marrow Failure

Saturday June 7, 2008

Dr. Joachim Deeg, a member of the AA&MDSIF Medical Advisory Board, and his colleagues at Fred Hutchinson Cancer Research Center in Seattle are once again organizing a patient conference with the broad theme of marrow failure. The conference, to be held all day on Saturday, June 7 at the Center, will focus on MDS, myeloproliferative disorders and aplastic anemia.

To register for this free conference, please call the AA&MDSIF office at (410) 867-0242 or (800) 747-2820 or email fisher@aamds.org with your full name, postal mailing address (to receive the registration packet), and phone number. Please also note in your email whether you are a patient or a caregiver/friend and what disease (aplastic anemia, MDS, PNH, or other related disease) affects you.

Hotel Information

Current Management of Myelodysplastic Syndrome, Myeloproliferative Disorders and Aplastic Anemia

Fred Hutchinson Cancer Research Center, Seattle, WA

June 7, 2008

8:30 am	Continental Breakfast
9:00	Welcome	HJ Deeg
9:05	Recent developments in our understanding of the mechanisms of marrow failure	A  Ramakrishnan
9:25	Treatment of Aplastic Anemia	K.Doney
9:55	Epidemiology of MDS	A DeRoos
10:25	Treatment of MDS	B Scott
11:05	Break out session – questions by and answers for patients
12:00	Lunch
1:00 pm	Treatment of MPD	R Mesa
1:45	Leukemic Transformation	E Estey
2:15	Coffee break; discussion of patients with speakers
2:45	Transplantation for MDS and MPD	HJ Deeg
3:15	Quality of life when living with a fatal disease	K Syrjala
4:00	Questions and answers
4:30	Conclusions	B Scott

Sunday, June 8th, 2008: Chicken BBQ & Benefit Auction funding the Torry Yahn Research Study

June 8 from 1:00 PM - 6:00 PM Churchville, New York

As loving parents of Torry Yahn, Donald and JoAnn have dedicated themselves to helping other families who have loved ones stricken with bone marrow failure diseases. This benefit is to honor the memory of Torry - the Yahns beautiful daughter, along with Brianna Johnson and Ashlee Tellier - three courageous young girls who lost their fight against Aplastic anemia. The Yahns are determined to raise more money each year for research. All of the money donated to the Chicken BBQ & Benefit Auction goes directly to research for bone marrow failure diseases through the AA&MDSIF Torry Yahn Research Study.

Please help Donald and JoAnn help parents who are battling to keep their children alive!

Tickets are $7.00- children 5 and under eat free!

For more information, or if you are able to Donate Items for Auction, please contact JoAnn Yahn at 585.494.1367.

Make a donation directly to the AA&MDSIF for the Torry Yahn Research Study.

Jul 27 - 29, 2008: 2008 Patient and Family Conference to be held in Washington, DC from July 27 - 29

Capitol Hill Advocacy Day July 30

The 2008 conference will begin on the afternoon of Sunday, July 27 with Aplastic Anemia 101, followed by PNH 101, and then MDS 101 for people who would like an introduction to the different diseases.  The conference will officially open that evening with a reception and talk.  The conference will run through Tuesday, July 29 followed by Capitol Hill Day on Wednesday, July 30 where you can meet with your members of Congress and educate them about bone marrow failure disease. To be held at the Crystal Gateway Marriott in Arlington, Virginia just across the river from Washington, DC, the conference will also be a celebration of the Foundation's 25th anniversary. Patients and their families will hear from leading medical experts about the latest in research and treatment options, share experiences, exchange ideas, and make friends.

The third annual Bone Marrow Failure Conference: Diagnostic and Treatment Issues for Nurses will be held prior to the Patient and Family Conference on Saturday, July 26.

Registration will begin available April 1, so check back then to register online. We look forward to seeing you in July!