Find an Expert

Aplastic anemia, myelodysplastic syndromes, and paroxysmal nocturnal hemoglobinuria are rare diseases that require expertise in their diagnosis and treatment.  A hematologist is a doctor who specializes in diagnosing and treating diseases of the blood and bone marrow.

You can locate a hematologist who is an expert by contacting a hospital affiliated with a medical university. Generally, the doctors at teaching hospitals are both researchers and clinicians.  They are more familiar with standard and investigational treatments for rare diseases.  Ask for the Hematology Department and request an appointment with a hematologist who is an expert in your disease.

Browse our listing of Patient Clinical Trials to find physicians and treatment centers that specialize in bone marrow diseases. Also, refer to our Resources Directory.

Patients and families can contact Leigh Clark, AA&MDSIF Patient Educator, at 800.747.2820 or clark@aamds.org for more information on finding a doctor and getting second opinions.