Patient and Family Conferences

In 2010, AA&MDSIF will hold a national Patient & Family Conference in Bethesda, Maryland July 10 - 13 along with four regional one-day MDS conferences, each accompanied by a shorter Aplastic Anemia Update. These gatherings will bring hundreds of patients and their families together with a selection of the world's most distinguished medical experts in bone marrow failure diseases and their treatment.

We strongly encourage you to attend one of these live events if you or your loved one has been diagnosed with MDS or aplastic anemia within the last few years. Information you learn should be shared with your personal healthcare team.

National Patient and Family Conference

Join hundreds of patients and families Saturday, July 10 – Tuesday, July 13, 2010 at the Hyatt Regency in Bethesda, Maryland to meet top experts on aplastic anemia, MDS and PNH. Hear directly from leading experts about the most current thinking on the bone marrow failure diseases, their diagnosis and treatment. An array of "living well" presentations on topics like beating fatigue, navigating health insurance and being your own best advocate will also be included. In addition, attendees will also have the opportunity to meet other patients and families in specially designed workshops allowing everyone the opportunity to connect with one another and share, not only knowledge, but concerns and questions. Online conference registration will begin April 1.

2010 - Washington, DC (Details and registration available 4/1/10)

2009 - Indianapolis

2008 - Washington, DC

One Day MDS Conferences

Living with MDS conferences will provide up-to-date information on the diagnosis and treatment of MDS, along with sessions aimed at optimizing physical and emotional health before, during and after treatment. These conferences will also offer an opportunity to meet other patients and their families. Plenty of time will be left for questions. The conference will generally run from 9:00 am until 3:30pm. Registration will be available about six weeks prior to each conference date.

May 22	Houston, TX (registration available 4/1/10)
June 19	Seattle, WA
September 25	Chicago, IL
October 16	New York, NY

Aplastic Anemia Updates

Updates will cover the most current thinking on the treatment of aplastic anemia, provided by experienced medical experts. Plenty of time will be left for questions. Time will also be included to meet other patients and their families. The Update program will generally run from 4:30 pm until 6:00 pm. Registration will be available about six weeks prior to each conference date.

May 22	Houston, TX (registration available 4/1/10)
June 19	Seattle, WA
September 25	Chicago, IL
October 16	New York, NY