AA&MDSIF - Aplastic Anemia & MDS (Myelodysplastic Syndromes), PNH (Paroxysmal Nocturnal Hemoglobinuria)

In Focus
Updated: 11/23/09

Please CONTACT your U.S. Representative TODAY about support for $7.5 million in research as part of the 2011 Department of Defense appropriations bill.
	Read the March issue of the eInsider for all the latest news and information. Have you signed up to receive monthly newsletters?
	Visit our Online Learning Center. Share this easy-to-access information with your family and friends: - upcoming PNH webinar - pre-recorded aplastic anemia, MDS and PNH webcasts Be sure to check back for a complete 2010 schedule of webinars.
	Hope, Steps & A Cure is a fun & festive walk in your own community to raise awareness about bone marrow failure diseases while raising much needed funds for programs & services to help patients & families. LEARN HOW to organize your own walk -- or participate in a current walk.
	When you are diagnosed with a bone marrow failure disease, you may start thinking about health insurance in a new light. This section provides guidance and advice so you can better navigate your insurance and understand your rights under your plan and your rights under state and federal law. LEARN MORE.
	ELIMINATE INSURANCE CAPS - Email your Representative and Senators now! URGE sponsorship and support of H.R. 1230, the Bone Marrow Failure Disease Research and Treatment Act of 2009. LEARN more about this important legislation. READ the bill and CHECK to see if your Representative has signed on as a cosponsor. (43, as of 1/8/10)