Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Saturday, April 13, 2024 - 7:45am

The time is now to save your seat for the 2024 Patient and Family Conference in Los Angeles! Plan to attend on April 13, 2024, in Los Angeles, CA,...

March for Marrow»

Saturday, April 6, 2024 - 8:00am

March for Marrow TX 2023 is back! Welcome to our second in-person March for Marrow TX, The Woodlands, since 2019! Our 14th Annual March for Marrow...

Stories of Hope»

Jocelyn Boyer

Before diagnosis, Jocelyn’s life was normal, predictable. She was thriving her senior year in college, studying Public Relations. In 2008...

Professional Conferences»

March 21, 2024

The biennial Symposium will bring together physicians treating these diseases; laboratory researchers studying genetics, genomics, and...

Online Library

Webinars »

October 14, 2023

Dr. Lourdes Mendez explains High-Risk MDS, or Myelodysplastic Syndromes, in detail for patients and families from the 2023 Patient and...

Podcast Episodes »

AAMDSIF Podcast for Patients

Ron had a sudden alert when he learned he had one of the rarest of diseases. Listen to this conversation to learn how he managed diagnosis, treatment...

Conference Materials »

Saturday, October 19, 2024 - 7:30am

Registration is open for the Tampa, FL, Patient and Family Conference.  Please join your peers and bone marrow failure experts for this...

Research Articles »

Originally published: January 1, 2024

Background: Allogeneic haematopoietic stem-cell transplant is an option, potentially curative, for high-risk acute myeloid leukaemia (AML) and...
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Together, We are Impacting the Lives of Patients and Families

"The AAMDSIF community has been a safe space to land in a turbulent and often unpredictable storm. Patients with bone marrow failure disease and their families need all the support they can get. AAMDSIF provides patients and their families with critical resources like educational webinars, conferences, and support groups."

Your donation supports our mission »